Why We Have Chosen to Homeschool

I have posted before about how it is difficult to keep on fighting with the schools in order for my child to get the education he needs and deserves. Over the past year, we have all jumped through many very expensive hoops, having him tested by psychiatrists and psychologists to get an idea of how smart Caleb is and if his behavior can be calmed with medication.

Finally, a year later, and we know from the WISC that Caleb is beyond genius. While taking the test last year, Caleb refused to finish the test and he still got an amazing score. We also have him on medications that have helped Caleb even out – that said, by 6pm, he is nutsos again!

My husband, Caleb, and I all thought that with his NWEA and WISC scores that certainly now Caleb would be offered differentiated education. Nope. We got no help whatsoever. They just asked us to take more and more tests, which didn’t make sense since they had enough information from two years of tests to determine Caleb’s ability. I tried to reason with Shellie Cole, and then her boss, Dr. McDougal. Alas, neither of them were willing to teach Caleb math and reading at a 7th grade level. At some point, all three of us were exhausted and our nerves were fried.

Now, I will admit that having the day free sans Caleb is nice, but it isn’t as nice as having a happy child. After having such family drama last year, I learned a lot about myself. It turns out, I don’t really care if Caleb graduates high school by the time he is 14-years-old like I used to. I just want him to be happy. And school makes him unhappy.

CalebFarmingtonLibrary

Caleb does go to school for 30-60 minutes a day for specials (art, music, gym) and therapy (speech, OT, social work). Caleb and I also regularly visit the Farmington Library and go to the Hands On Museum in Ann Arbor every Friday. At both places, he is able to have some autonomy and he can be “the leader.” He is able to interact with other kids as he pleases, but even just being around other people, he is learning to live in a world full of other people who expect certain behaviors (such as personal space). These are invaluable life lessons.

While Caleb is in school, I stay in the school office just in case there is a problem, but so far things have been going well. If he continues to behave while at school, that might actually give me enough free time to take the dogs to the dog park! I can smell freedom, and it smells like dogs.

I have a lot of spinning plates that I have had to put down in order to focus on Caleb. I don’t think he full appreciates how much of my freedom I have sacrificed, but I think one day he will. If not, I can always rely on my skills in Jewish guilt to torment him until I die. 🙂

 

I Forgot How Hard I Have to Fight

It is only the second day of school, and I am already getting push-back from Lanigan Elementary. I just called the Farmington Schools Special Education Supervisor, Shellie Cole, because Caleb’s teacher is making him do first grade math; we finished first grade math over the summer. So, now I have to fight for him to be treated as a gifted child as well as fight for his rights as an autistic child.

Why isn’t there a Special Needs Advocate in Oakland Schools? This should not be happening. Right now, Caleb is being punished for being so productive over the summer. And when Caleb is bored (which will happen if you ask him to do simple math) he acts out; Caleb needs the stimulation of thinking in order to stay on track. If it isn’t challenging for Caleb, why make him do it?

Plus, yesterday, on the first day of school, the administration started giving us a hard time at drop-off. Yes, parents are not supposed to get out of their car in the drop-off lane, but my husband was driving and Caleb and I hopped out. Why? Because there were no handicap spaces available and the parking lot was a) completely full, and b) a nightmare with cars going in the wrong direction just to find a place to park. Caleb cannot walk through a crazy busy parking lot while I’m carrying in a ton of school supplies. Why? Because we have to provide all of his food and snacks and whatever comes up because he is gluten-free/casein-free; if we didn’t supply the extra snacks, the school wouldn’t provide safe food for him during snack time or special celebrations. There is a kid in his class with a severe nut allergy; NOBODY brings anything in that has even been processed with nuts. My son’s response to gluten and casein is not life-threatening, so they don’t really see it as important. Caleb has regularly come home with a note saying he ate an Oreo or something.

1 in 37 boys have autism. Why aren’t we coming together as a force to be reckoned with? Why do I have to call administrators and talk to a zillion random Farmington workers and educators just to make sure that my son is given his proper education?

My son has the right to the kind of education that is responsive to his needs. My son has a parapro; it is not like it would be difficult for Caleb to do his own challenging work while other kids do theirs.

I forgot about all this hassle. I forgot how everything is a fight.
I hate fighting.
But I have to fight.
If I don’t fight for my son, who will?
Definitely not Lanigan. 😦

Pokemon Go

Caleb, who is turning 7 December 9th, is obsessed with Pokemon. There is a great big Pokemon world, and Caleb is fully immersed within it. He loves memorizing the different Pokemon, their stats, special moves, and evolutions. Pokemon Go does not play on any of his current electronic devices, so we play on my phone (Samsung Galaxy 7). Sharing my cell phone with Caleb takes a great deal of trust, but I also hover over him so that I can stop any unwanted behavior (like the time he sent hundreds of dollars to a dog breeder because he wanted a puppy).

Caleb is definitely a homebody like his father. I, however, am the adventurous one. I mostly like to plan ahead, but I also like to fly by the seat of my pants. I can basically bribe Caleb into walking around with me with the promise of Pokemon Go stops, gyms, and battles. Today, for instance, we walked around downtown Farmington (our home city) for about an hour, but we broke up it into a bunch of small trips; we would stop and sit if we were trying to defeat a gym or catch a bunch of Pokemon in an area.

Pokemon Go also gives something for Caleb and I to connect over. We have many, many conversations about Pokemon; we talk about our favorite Pokemon and where we want to go to collect them. At night, we go through maps of areas around us that have plenty of Pokestops or rare Pokemon. We even watch the TV show together, watch the movies, read the books, wear the clothing, and pretty much buy any piece of crap that has a Pikachu on it. Seriously, Pikachu is like a god to these kids! He is powerful but sweet, nice, and totally adorable; it is a pretty irresistible package.

While playing Pokemon Go, Caleb practiced a bunch of other skills without realizing it. Just walking alone helps strengthen his core, but not only that, he is learning to take in the world with his eyes, not his hands. He walks with me nicely; he has to look both ways before crossing a street or driveway; he practices using his peripheral vision to alert him to activity around him; he is learning about instant gratification (catching a Pokemon) versus delayed gratification (powering up and evolving Pokemon); and he is learning how to follow rules when playing a game. Pokemon Go also helps with reaction time and eye-hand coordination – this is especially true when trying to catch Pokemon or fight in a gym.

I have mentioned before that the studies done on children spending time with electronics have very specific results. I have heard other parents and educators make blanket statements about for how long a child should be able to use an electronic device; the truth is that the electronic devices only interfere with learning when the child is playing during educational time. Playing on an electronic device during their free time is not going to affect their learning. That said, Caleb doesn’t exercise enough. Shoot, I don’t either. It is funny because we both have weak cores; my stomach muscles are totally separated from pregnancy and Caleb has been working on his core since he was 2. So, do I want Caleb sitting at home, playing on his computer all day? Heck no. But, if we can play AND exercise at the same time, then it is fun. For more information on learning through electronic devices, I suggest any articles or books by James Paul Gee.

I would really suggest Pokemon Go for all interested autistic children and adults. There are so many stats to memorize and cute characters with whom you can interact, so there really is something for everyone. And the only way to hatch the eggs you catch is to walk around. So, we are walking. And we are having a blast.

When is it Worth the Fight?

My father gave me two pieces of advice that I will always remember. He sat me down before I went off to college and he told me: a) you may win the battle but lose the war, and b) never ever mix your drugs. (I’m serious. That was our entire conversation.)

When dealing with people, I tend to be results oriented; I tailor my behavior in order to get the desired outcome. For instance, if my goal is to be on good terms with a person, I will let things go because it isn’t worth the battle. When dealing with Caleb, being results oriented has been very helpful.

When I think about what I care about, it really boils down to me wanting Caleb to be healthy and happy. I also want him to grow up and be a good partner to someone he loves. So, I want to raise a healthy, happy gentleman.

How do I do this?
First of all, this is something that I thought about while Caleb was still in my belly. I never told him “no”; I always said, “no thank you.” I try to always use my manners with him and with other people so that I am modeling the kind of behavior I want him to emulate (see: Bandura). Caleb doesn’t think about being polite – it just comes naturally to him because we have conditioned him to use his manners.

Setting Caleb up for success is something that is constantly on my mind. This involves identifying and removing obstacles that can negatively affect Caleb’s goals. One way we do this is by buying Caleb pants that have a stretchy waistband because he has trouble unbuttoning his pants when he needs to use the potty. Or we transition to the family bed 45 minutes before bedtime, so we are getting in the mood for sleep.

But what happens when I cannot control the situation? What happens when Caleb is demanding something that I don’t want him to do or have? One of my main methods is a twist on The Passionometer Protocol. Basically, if Caleb wants something more than I don’t want it, then I give in. Exceptions to this rule is when Behaviorism comes into play. If Caleb is acting out and then I let him have his way, I am teaching him that in order to get his way, he can just throw a fit. It is so important to watch for unintended consequences when using positive reinforcement.

This weekend we are having a garage sale. This is very difficult for Caleb as he feels a true emotional connection to everything he owns. He even wants to keep clothes that he grew out of years ago. I have to figure out a way to stay firm and expose Caleb to some of the these parts of life that will be difficult for him, but also not push him off the cliff into Meltdown Land. I have let him take 5 or 6 small toys back, but I also said “no” to quite a bit. Caleb is exhausted because this process is mentally taxing for Caleb. I need to remember that and set him up for success by making sure he goes to the potty every 45 minutes, eating and drinking, and trying to not put one more piece of straw on that camel’s back.

Sometimes the battle is not with Caleb; sometimes it is for him. I have to constantly butt heads with our school, Lanigan Elementary in Farmington Schools. His special needs coordinator is super nice, but the principal and I do not get along. Lanigan does not have an ASD classroom; I refused to have Caleb go to a different elementary school because he has the right to go to school with his neighbors and friends. I finally had to send a letter to Lanigan cc’ed  to the superintendent office asking for them to test Caleb across all academics. Caleb is at a 3rd grade level in math and reading. Caleb also has anxiety, and just the idea of the tests makes him nervous. Caleb says that he will not take the test without me next to him. The superintendent’s office said that I could be in the building but not next to him. Am I supposed to battle my child into taking a test or do I stand up for my child? I mean, obviously, I have to stand up for him.

Do I look forward to fights I have ahead? Not at all. I hate fighting. I hate tension. I’m the person that just wants to walk away from a fight. It is exhausting, emotionally and physically. But, I have to be a Mama Bear and protect my cub. When I talk to other parents of special needs children, I hear horror stories about schools not supporting them enough. So many special needs kids we know go to private schools, but truth be told, there is no way we have the money for that.

I really wish schools would change their way of thinking, but I’m not holding my breath. So, these next coming weeks, I will be looking into the law on Michigan education, specifically with special needs children. I have found that having facts is much more important than having a strongly held opinion. One more thing – I can be a hot head sometimes, but my husband is always cool as a cucumber. When I am nearing my boiling point, I tell my husband our code word, and he knows to take over. In order to truly be results oriented, I can’t go around pissing off administrators. I have to be an adult. I have to be mature so Caleb can be a child.

That said, I really really want to show up for our IEP meeting wearing a Xena outfit. 🙂